Alzheimer's Web Sites and Blogs - June's Website
- Published on Thursday, 23 December 2010 22:23
- Written by Stanton O. Berg
A Discussion of Web Site Types
A Website (Web Site) is a set of interconnected web pages. A Website normally includes a homepage and is usually located on the same server. Such a site is prepared and maintained as a collection of data, information and graphics by a person, a group, or an organization. The purpose of a web site may be for personal or business use or application. The Web Site may also be income producing and either be a for profit or non profit purpose. A Website may also relate to charitable purposes. A true independent web site has it's own Domain name and address and it's own site located at a professionally hosted site.
One type of Website is a Blog. A blog (a blend of the term web log). It is either a type of website or a part of component of a website. Many blogs provide commentary or news on a particular subject; while others function as personal online diaries or journals. Blogs are usually maintained by an individual with regular daily entries commonly displayed in reverse-chronological order. Most blogs are interactive, allowing visitors to leave comments. The interactivity distinguishes them from other static websites.. The ability of readers to leave comments in an interactive format is an important part of most blogs. Blogs are normally not prone to organized searches for information due to their very nature. Most are a single page that scroll's downward as needed to accomodate the entries. They are usually indexed only by month and year and frequently have numerous links.
The Internet Corporation for Assigned Names and Numbers (ICANN) manages the develop0ment and architecture of the Internet Domain Name Space and authorizes Domain name Registrars. It is a part of DNS (Domain Name System). The registration of domain names is administered by Domain name Registrars who sell this service to the public purchasers of Domain names. The purchase of a domain name confers an exclusive right of use of the purchased domain name. The purchase is by year with a limit of no more than a maximum of 10 years ownership of the domain name at one time…the domain name ownership is renewable as long as it does not exceed 10 future years. The main name is normally followed by a suffix such as.”com” or.”org” or .”net”. The “com” ending is the most common. If one desires all three variations, they must all be separately purchased.
What does it mean to have a website without Domain name ownership? In effect it means that the site is parked on the Domain name site of someone who owns that particular Domain name and is renting the site space from a site host. It also means that a continued presence on that Domain site is at the courtesy, pleasure or convenience of the Domain name owner.
This distinction came home to me with startling clarity when our first web site for June’s honor and memory was a site located on the AOL’s domain site in the mid 2000’s. AOL made websites available to all of their customers. It was a simple single page that scrolled down in length as needed to accommodate the amount of text on the page. Such a site had very limited features. However in 2007, AOL decided to discontinue this service to their customers. That ended my first website in June's honor and memory. I had a similar experience with MSN. It was in 2008 that we decided to purchase our own Domain name (junebergalzheimers.com) and rent our own yearly space with a commercial site host.
Site Maintenance and Management
Web sites require maintenance of the site to retain continuous trouble free operation and function. The individual who has the competence to edit, change and update the site is usually referred to as the "Webmaster". I am the webmaster of June's web site. Editing of the site is done by CMS programs or content management programs. This program permits me to make editorial changes in the pages, essays or articles. I can add or delete pages. I can add or delete photos and illustrations and add or delete links. I also maintain the menus. I use the Joomla CMS programs...In addition a site needs a technical advisor and support person who is qualified to analyze and resolve internet operatonal problems. Such a person is also able to make structural changes to the configuration and operation of the site itself. June's website has such a technical advisor and this lady is listed on the bottom strip of the site. Kathy Chayka is my site support and technical advisor. This lady also makes quarterly back up copies of the site.
The current Facebook pages are excellent examples of individuals having websites in which they do not own the Domain name. The Domain name is of course Facebook and is owned by Facebook as is the site itself. The Facebook pages are also good examples of the Blog type of website in which it scrolls down to accommodate the amount of text and pictures-photos with numerous links. Like the true Blog, it is interactive by the readers/friends. In addition to June's regular web site as described below, I maintain a facebook page in my name Stanton O. Berg and another Memorial facebook page in June K. Berg's name and both are primarily used to promote Alzheimers's awareness, research, funding and proper care practices.
Most of the internet Alzheimer’s related websites are personal memorials with related Alzheimer’s information. Some are operated as a blog. Most are non profit in nature. Some have advertisements and are income producing and for profit operations. Some may also be related to a business function. Some websites such as June’s, may have a charitable function.
June K. Berg’s website is primarily a standard form of website with no blog feature. June's website has it's own privately owned Domain name and address and is located on and with a professional site host.
June’s website is intended to:
(1.) honor and preserve June’s memory while also -
(2.) promoting an Alzheimer’s awareness. A primary purpose of June’s website is to -
(3.) provide information on Alzheimer’s for the family and caregivers of Alzheimer’s victims. June’s website is further intended to -
(4.) promote Alzheimer’s research, funding and proper care practices.
(5.) Multi-charitable functions are also associated with the above objectives in an effort to demonstrate a reflection of God's Love..
June’s website is personal in nature and is not utilized for any business or commercial purposes. The site is not income producing and does not accept commercial or business advertisement fees, gifts or income of any kind.
June’s Website is faith based with a number of articles or essays relating to June’s Lutheran-Christian faith. The home page’s large top of page graphic sets the tone with a fog shrouded figure crossing a bridge while journeying towards a distant cross in the sky.
June’s website has a strong multi-charitable function. A number of private charitable programs are administered in honor of and in behalf of June K. Berg. These programs can be found on June’s website on the bottom graphic navigation box entitled:
The resulting menu of (15) Fifteen items, lists the thirteen (13) current and active charitable type memorial functions including this website, having June and an Alzheimer’s connection. Recipients of the various charitable functions, would where appropriate, each receive a letter from June with her picture (prepared in behalf of June by her husband Stan) that outlines June's Alzheimer’s history and refers them to June’s website for more information.
These (13) thirteen active charitable functions except this website, and the awareness card program, are essentially related to three organizations. One is the Redeemer Lutheran Church, one is the Benedictine Health Care Center of Innsbruck through the Innsbruck Foundation and one is Compassion International. (The Redeemer Lutheran is June’s church in which she was a member for over 50 years. The Benedictine Health Care Center of Innsbruck is the “faith based” care facility that June was a resident in for the last 2.7 years of her life. Compassion International is related to the sponsorship of the little girl from Africa.) Because June has and had a strong faith in God, she would want the memorial programs that are administered in her behalf to be an expression of God’s Love! What better way than through faith based non profit organizations? All donations made in June's behalf for the memorial functions described, are made directly to the associated organizations administering the memorial functions. Such donation payments would be made to the Redeemer Lutheran Church or the Innsbruck Foundation. No direct payments or donations are made to individuals. The card distribtion programs (Alzheimer's Awareness) involves (8) eight cooperating business establishments having a former connection to June's life.
One of the more static functions is the Memorial Stained Glass windows to be found in the Holy Spirit Chapel at the Benedictine Health Care Center. The windows are (6) six in number and are dedicated to June, June’s father Henry and her mother Haldis, June’s mother in law Ellen, and June’s father in law Tom. The largest window is dedicated to June and Ellen, who were both Alzheimer’s victims and to all the world wide victims of Alzheimer’s with a prayer for God’s peace for all who are afflicted with this terrible disease.
Also included in the menu listing of (15) Fifteen, (not one of the charitable functions), is a (living memorial of Azaleas) planted in memory of June by her daughter Susan at her home in Cary, NC.
Stanton O. Berg, who was/is June’s husband of 56 years, is the administrator of the website and also administers the private charitable programs in June’s behalf. Stan is and acts as June’s worldly agent. Stan uses the private and personal funds and savings that were acquired and that resulted from June and Stan's lifetime marriage partnership. Upon Stanton O. Berg's death, provisions in his will provide for the continuation of the charitable functions and this website by his personal representatives for a period of at least 10 years.
NO outside funding or financial assistance of any kind or from any source is accepted in order to administer or finance any of the above described charitable functions. Direct contributions however may be made to the Redeemer Lutheran Church of Fridley, Minnesota for use in the (June K. Berg, Old Chapel Repair Fund) as administered by that church.
Because of June's personal interest and love for the Billy Graham Evangelistic Association, monthly donations are made to this association in June's name. This is the only other charitable function in June's name that is not Alzheimer's related and is accordingly not included in the above listings.
June and Stan were both appointed as Purple Angel World Dementia Ambassadors (October 2013) for the purpose of promoting world wide awareness of Alzheimer's and the dementia diseases. Such an awareness will in turn promote funding for research to find a cure and to promote proper care practices. June was appointed an honorary Purple Angel Ambassador with Stan as her representative in order to promote her many charitable programs that all have an Alzheimer's and dementia awareness connection. June is the only resident of Heaven to have received this honor...and who actually lives among the Angels...The Purple Angel world headquarters is in Devon, United Kingdom.
Traffic to June’s Web Site in the Year 2012
381,161 page visits in Calendar year 2012.
1,044 average daily page visits in the year 2012.
Origin of page visitors in 2012, indicates visitors from 142 foreign countries.
The 3 highest volume foreign page visitors: Netherlands with 78,450, the Ukraine with 38,570 and Germany at 19,950. (China and Russia followed as 4th and 5th in volume...US estimated at 127,680...The Country page numbers estimated because of site host location change near end of March.)
* Data from Content Management System program (Joomla) and the site hosts data.
Tracy Lund - Roseau, Minnesota - (16 July 2013): "You are making such difference Stan in her honor & in the name of love!!!"
Jill A Lindsay - Norfolk, Virginia - (16 July 2013): "Just looked a the website. My own dear mother-in-law was placed into an Alzheimer's facility, today has been very emotional for me. Thank you for the uplifting tributes to your wife, they are truly amazing. Thank you for sharing your lifelong journey with others."
Lin Schmidt - Anoka, Minnesota - (16 July 2013): "You're doing good work for June, Stan!"
Kim Monery (17 July 2013): "Well done Stanton. Such an inspiration."
Maxine J Bailey - Rotherham, United Kingdom - (17 July 2013):"Please keep going Stan it needs to be eradicated...My Dad has been consumed by it, he is laid to rest tomorrow."
Michelle Hall Miller - Irvington, Alabama - (17 July 2013): "The Today Show had a segment on Alzheimers's Tues., maybe June's site sparked it?"
David Glesne - Fridley, Minnesota - (17 July 2013): "This is incredible, Stan!, Pastor Dave."
Lisa Walsh - Melbourne, Australia - (17 July 2013): "Thanks for sharing June's page Stanton. I have shared it with my fellow class members. We are studying aged care at the moment, and I am about to do my placement in a dementia unit, I find your links and information very interesting. June's page has certainly spread wide and far, we are in Melbourne, Australia."
Beth Ann Doucette - Lino Lakes, Minnesota - (17 July 2013): "Wow!!:- Good for you:- It is something to share, and you have made it what it is:- It is not only interesting to read but VERY edicational:- Keep up the good work!!"
Dorothy Peabody - Vadnais Heights, Minnesota - (17 July 2013): "This is so awesome; I lost a sister from the very same disease!!"
Gill Denman - Essex, United Kingdom- (18 July 2013): "There's something unique about June's site, there's a lot of stuff about this evil plague on the web - no answers though. With your pages it charts a progression, it highlights how ANYONE can be a victim. It is personal, human and caring - things that are often lacking in the world today, things that many people need. To read the pages feels like joining a family, you just have to see the comments you get, everyone is part of a huge extended family centred around June pages and your postings. Dementia is a lonely path in life for victim and carer, it is easy to lose the feeling of being part of a community. People genuinely worry about you."
After an almost 12 year journey into the shadows of Alzheimer's, early one morning in late October 2008, an exhausted June felt God's gentle touch on her shoulder and heard the words: "Come Home June!" As June lay like a wounded soldier on a battlefield, it was God's Angels that ushered June into a Heavenly Kingdom and into Jesus presence to the sound of a chorus of Angels...and June's new home, a "Mansion on the Hilltop", where there is no pain, nor illness nor tears...June's funeral notice as published in the Minneapolis Star in October 2008 can be seen on this website in the drop down menu under the "In Memoriam" label - just Click on: